CALIFORNIA PERSPECTIVES
Commentary & Observations On Disability Issues - April 6, 2004
By
Marty Omoto - California Disability Community Action Network
Note: This is a periodic commentary of personal observations regarding
people with developmental and other disabilities. I view these issues from
the perspectives of a former direct care worker, agency board member,
advocate and the brother of Alana, who had developmental and other
disabilities. . Depending on how many cups of coffee this could be very
short or very long (whether I make sense is anyone's guess, though one can
be still hopeful against the enormous odds).
This is a
reprint of the opposing view guest editorial that was printed in the
Sacramento Bee on March 27 in response to a column by Daniel Weintraub
(March 16) regarding the Governor's proposals impacting children and
adults with developmental disabilities. This can also be read as a
response to a far less serious and far less thoughtful guest editorial in
the Orange County Register by Assemblymember Ray Haynes on the same issue
(though to be honest, it was hard to tell what issue Mr. Haynes was
writing about).
While the
focus of Weintraub's column was on services to people with developmental
disabilities, the emphasis of my response was on the issue of rights to
people with disabilities - and that the Governor's proposals represent
(perhaps unintended) attack on those rights, with cuts proposed to a wide
range of services and supports that infants, children and adults with
disabilities and seniors depend on. This includes cuts to in-home
services for people with disabilities and seniors, cuts to SSI/SSP, cuts
to regional center funded community based services, cuts to Medi-Cal, cuts
to mental health services, cuts to habilitation services, vocational
rehabilitation, cuts to accessible housing, transportation, and cuts that
will impact special education, adult education programs for people with
disabilities and more. Many of these cuts are made in the name of
'reform" or some other term that is meant to mask what the impact will
be. No matter what it is called, one child or adult with disabilities
could be impacted three or more different ways by the wide range of cuts -
an impact duplicated thousands of times across California. There are
other choices.
A year ago
last April, thousands came to the Sacramento Convention Center to protest
cuts to people with disabilities last year - and again in December
thousands more massed outside the State Capitol to let the Governor and
the Legislature know: the whole world is watching. These cuts cannot
stand if we stand for the rights of people with disabilities. As the late
civil rights advocate Justin Dart said: "We are here! We are united! And
we will not go away!"
Here is the
reprint of the guest editorial [Note:The guest editorial in the
Sacramento Bee is limited to only 400 words and I added back in a few
words that were edited out. Many thanks to the Sacramento Bee for
publishing the original response] :
Other
views:
Keeping the promise Gov. Reagan made to disabled
By Marty
Omoto -- Special To The Sacramento Bee
Published
2:15 a.m. PST Saturday, March 27, 2004
Ronald
Reagan, now a person with severe disabilities cared for in his own home,
probably would not be happy with Gov. Arnold Schwarzenegger's proposals
that would undo the Lanterman Act, the "civil rights act" for people with
developmental disabilities that he signed 35 years ago. Reagan probably
appreciates the critical value of in-home services, and wouldn't want cuts
that would force thousands of other families to put loved ones into
institutions where his own family would not want him to be.
Daniel
Weintraub's column on the proposed cuts to regional center services for
people with developmental disabilities was right in the need for change,
but wrong in concluding these proposals mean reform or would not cause
harm ("After misstep, governor applies a lighter touch," March 16).
Disability
rights is about reform and challenging the status quo. We are proud of
what has been accomplished over the years with people living in their own
homes, just as Reagan does. We have always been willing to engage in
efforts for real reform that increase efficiency without sacrificing
rights.
The
Lanterman Act, authored by a Republican, passed by a Republican-controlled
Legislature and signed into law by Gov. Reagan, began a profound
transformation of recognizing those rights. Now we are witnessing attempts
to undo those rights. When light shines on the details, it is simply a
brutal attack on children and adults with disabilities.
A proposal
to set limits on those rights and eliminate most fair hearings to contest
denial of services would give the state a blank check to cut services and
funding, resulting in a system that is not efficient, only punitive.
Another proposal to require parents with minor children to share the cost
of their regional center services is a tax, failing to calculate the
enormous resources parents already pay.
If Governor
Schwarzenegger can call the VLF a "car tax," oppose raising taxes and
support family values, how can he support this tax and these proposals?
Would he suggest that other parents pay a portion of their children's
public education to balance the budget? These reductions would devastate
thousands when combined with cuts to In-Home Supportive Services, Medi-Ca,
SSI/SSP and other critical services and supports.
The
governor can choose other options for real reform that do not sacrifice
the rights of children and adults with disabilities. That was a choice
Ronald Reagan made when he signed the Lanterman Act decades before his own
disabilities. It's a choice that the present governor should remember -
and a promise we will not let anyone forget.
URGENT -
CONTRIBUTIONS NEEDED TO CONTINUE EFFORT
As of 4/6/04,
many many, thanks again, to the friends, people with disabilities and
their families, community organizations and others who have sent in
generous and needed contributions and donations. As mentioned before,
individual thank you letters are now being sent out (due to workload have
been delayed!). However, until grant funding is finalized, contributions
from people and organizations is still very urgently needed to keep the
advocacy efforts going for the next several months. Please make check or
money order to: California Disability Community Action Network (or
abbreviate CDCAN). CDCAN is not yet a non-profit organization (work on
this will have this happen in within the next few months) Send
contributions to: California Disability Community Action Network, 1225
8th Street Suite #480, Sacramento, CA 95814. A method to contribute by
credit card (through Paypal) is NOW set up on our website, at
www.cdcan.org.
FOR MORE
INFORMATION ABOUT THE CDCAN AND THE CDCAN CAPITOL NEWS REPORTS
* The California
Disability Community Action Network (CDCAN) is a non-partisan link to
tens of thousands of Californians with developmental and other
disabilities, people with traumatic brain injuries, their families,
community organizations and providers, direct care and other workers, and
other advocates. The CDCAN Capitol News Reports and also the California
Perspectives goes to those people. In addition information from CDCAN
also goes to news organizations, state and local government officials and
staff.
* If you would
like to get on this distribution (and conversely, get off of it) please
send an email with that request to: martyomoto@rcip.com. Sharing
information is part of our organizing effort. Please feel free to forward
or copy this (attribution is nice). We're all in this together!
Marty Omoto,
director/organizer - California Disability Community Action Network
1225 8th Street
Suite 480 Sacramento, CA 95814 VOICE PHONE: 916/446-0013
FAX number:
916/446-0026 email: martyomoto@rcip.com
INFO HOTLINE TOLL
FREE NUMBER: 1-877-260-0267 (cannot leave messages)
SAME INFO HOTLINE
FOR SACRAMENTO AREA: 486-4652 WEBSITE: www.cdcan.org