NAMI SCC Website

 

 

 

 

 

 

 

Home
About
Links
Search
Advocacy
Editorial
Experiences
News
Newsletters
People
Research
Recovery
Santa Cruz
Site Map
Guest Book

 

 

Children's Mental Health Site of the Month

 

 

Warehouse for the Insane

LEGISLATION WOULD TRANSFER OVERSIGHT OF ADULT HOMES TO STATE MENTAL HEALTH AGENCY

Assembly member James F. Brennan (D-Brooklyn) will be submitting new legislation to transfer the responsibility of oversight of adult homes with a significant number of residents who have a history of mental illness from the State Department of Health to the Office of Mental Health.

"The mission of the Office of Mental Health is care and treatment of those with mental illness - making it the most logical and experienced agency to conduct oversight of the adult homes," said Mr. Brennan.

The history of weak regulation was documented in a recent series of articles in The New York Times.  "It is clear that the Department of Health has been unable to provide adequate oversight of these homes," Mr. Brennan added.

Lack of affordable housing especially for the mentally ill has led to the use of adult homes as a last resort for providing shelter short of living on the street.  For the long term, it will be necessary to reduce the size of these facilities and add professional staff.  To compensate for the loss of these units, and to provide housing for many others who are without permanent housing, as many as 15,000 new units of housing, either community residences or supported apartments, will have to be added to the system in the next several years.   The Office of Mental Health has greater professional capacity to oversee the reconfiguration of the system.

The Coalition for Adult Home Reform, which includes groups such as the National Alliance for the Mentally Ill (NAMI), Community Access, and the New York Association of Psychiatric Rehabilitation Services (NYAPRS), has endorsed the concept of transferring responsibility to the Office of Mental Health.  Clarence Sundram, former chair of the New York State Commission on Quality of Care for the Mentally Disabled, has also endorsed this concept.

Source:  Assemblyman Jim Brennan

horizontal rule

Excerpt from series from the New York Times:

April 29, 2002

BROKEN HOMES | WHERE HOPE DIES
Here, Life Is Squalor and Chaos
By CLIFFORD J. LEVY

Nicole Bengiveno/The New York Times
Seaport Manor in Brooklyn, an adult home the state once called "The New
Warehouse for the Insane."

It was the fall of 2000 and state inspectors were due to arrive at Seaport
Manor, an adult home for the mentally ill in Canarsie, Brooklyn. Upstairs,
some of its 325 residents, bewildered and mumbling, shuffled along the
dreary hallways. Downstairs, a handful of workers hastily doctored records,
they said, to make it seem as if the home was providing proper care.

The workers said they concocted case notes for manic-depressives who holed
up in their rooms for so long they became malnourished. They invented
psychiatric evaluations for residents who went untreated and turned
suicidal. They scrawled therapy plans for women who prostituted themselves
in the stairwells for cigarette money and for men who shook down other
residents for their $4-a-day allowance.

"We were told by the administrators at the home to be creative," said one
worker, Toshua Courthan. "We were told we had to, or else we would lose our
jobs. What the state wanted to see was that these people were being looked
after, but they were not."

Ms. Courthan was fired after reporting the falsifying of records and other
misconduct at the home to the state, and she is suing Seaport. Her account
was independently supported by other current and former workers, including
two who participated that evening, as well as by an examination of some of
the records.

The inspectors who showed up that day in 2000, however, apparently never
detected the hundreds of sham files, according to state records. Seaport,
which receives more than $3.5 million annually from the government, stayed
open. For its residents, life has remained as wretched as ever.

Occupying a one-acre tract, the five-story brick building sits behind a row
of shrubbery at 615 East 104th Street, not far from the neighborhood piers.
A generation ago the home, along with dozens like it, represented a briefly
entertained hope for the thousands of mentally ill people being pushed out
of state psychiatric hospitals. In these homes, residents would learn to
live independently and enter a mainstream community.

Just how profoundly that vision has collapsed can be appreciated in words
from the state itself, which dubbed Seaport "The New Warehouse for the
Insane" in a 1997 study by the Office of Mental Health. If the state gave
Seaport a cynical nickname, though, records show it did nothing meaningful
to improve or police it.

A portrait of life inside Seaport was gleaned from more than 10 visits, more
than 500 pages of state inspection reports and government documents obtained
by The New York Times, as well as more than 50 interviews with workers and
residents.

During a typical visit to the home, residents can be seen sitting for hours
in the crowded smoking room, rocking back and forth, speaking only to
themselves. Others can be spotted walking to the local liquor store, much to
the dismay of those at the nearby day care center.

Current and former workers said two residents openly deal crack from their
rooms, contributing to the drug abuse, loan-sharking, prostitution and
violence that have gripped the home for years. In this predatory atmosphere,
the frail quickly learn that the safest place is behind the closed doors of
their rooms. Others find different ways to get by.

"It's tough around here," said a resident in her 50's who said she sells sex
to workers and other residents for a few dollars. "You have to do it to
survive."

Ambulances are regular visitors. In a three-month period last year, they
made 93 runs to the home, city records show, sometimes to take away the
dying, other times to rescue the neglected.

For years, workers said, a security guard subdued psychotic residents by
beating them. Other employees are convicted drug dealers, prison records
show. Several former workers said the home sometimes continued to collect
the monthly disability benefits of residents after they died, or gave their
Social Security numbers to illegal immigrants the home hired.

There were dozens of numbers to choose from. From 1995 through 2001, one
Seaport resident died roughly every month, according to an analysis by The
Times. In all, at least 79 died, including at least three who committed
suicide and two others whose bodies were discovered only after workers were
drawn to the smell of decay.

"This is the last stop," a resident named Jerry said in his room at the
home. "They are not preparing anyone for living outside of here."

For 26 years, the state has documented problems at Seaport and then averted
its eyes. Since 1998, conditions have been so bad that inspection reports
concluded that Seaport, as one said, "was in serious noncompliance in all
major areas of operation."

The reports cited inadequate staffing and dangerous lapses in the
distribution of medication. During a 1999 inspection, investigators refused
to fully examine rooms because they were so fetid. They also remarked in
their records how workers at the home were able to walk past disheveled
residents without even noticing them.

Only in recent months, after The Times began an investigation of Seaport by
requesting government records and questioning officials, did the state say
it would crack down on the home.

Its response, however, has been erratic.

Last August, the state said it would try to revoke the operators' license.
Last month, it agreed to let them surrender their license, pay a $20,000
fine and close the home. But in recent days, the state, confounded by the
prospect of finding new housing for the residents, indicated it might try to
keep Seaport open by installing new operators.

For now, the residents remain in Seaport under the same operators who the
state has known for years have run a home of squalor and neglect. In 2001
alone, at least 18 residents died, The Times's analysis shows, 10 of whom
were under 60.

Seaport's operators — Baruch Mappa, Martin Rosenberg and Emil Klein — said
through their lawyer they would not be interviewed.

Before agreeing to surrender their license, the operators asserted in a
disciplinary hearing before the State Department of Health that the home had
undertaken renovations, overhauled medication practices and brought in more
workers to increase supervision of residents.


Continued


(Page 2 of 5)

"Seaport doesn't take the violations or alleged violations lightly," Ronald
J. Aranoff, the home's lawyer, said at the hearing.

Over the years, Seaport, like many other adult homes, has often complained
that the state has asked it to take responsibility for some of the most
needy people while failing to provide enough money for their care. About
15,000 mentally ill adults live in more than 100 adult homes in New York.

The Department of Health said it did not take more aggressive action against
Seaport in previous years because it preferred to help troubled homes
improve conditions.

"Closure of a facility is disruptive to patients and residents, especially
the elderly or mentally ill, and is typically pursued as a last resort after
a home's repeated failures to comply with state regulations," said Robert R.
Hinckley, a deputy state health commissioner.

The failures of Seaport can be witnessed in varying degrees at other adult
homes in the city. State inspection reports on many of the homes are grim
and interchangeable. Even so, the state seems to have grown accustomed to
slapping the homes with one hand and shielding them with the other.

For the people who still live at homes like Seaport, most of whom are too
sick to grasp the notion that they are entitled to something better, life is
about doing what they can to endure.

Residents and workers at the home call it payday. Once a month, Seaport's
administrators hand out about $120 in allowance money to each resident from
the disability checks they control. Then the pandemonium begins.

In-house loan sharks chase residents down the hall, intent on collecting
their money, according to numerous current and former workers and residents.
They said two crack dealers also opened for business, packing in an
assortment of fellow residents, and even the police said they have made drug
arrests at the home in recent years.

Those residents unwilling to take part in either enterprise run to their
rooms, fearful of the opportunistic and desperately in need of their tiny
allowances. Inevitably, the strong at Seaport always know when the weak are
in line to get their money.

"It would be just one big mess," Angela Peters, a former housekeeper and
dietary aide, said of payday. "We couldn't do any work on the floor because
it was so crazy."

From the outside, Seaport looks like a decent alternative to the
homelessness that defines another portion of the city's mentally ill. From
the inside, based on visits to the home and extensive interviews, it does
not. If a coed prison for the mentally ill were to exist, the inner workings
of its yard might resemble Seaport. Except the prison would have security
and a professional staff.

Ideally, the home is supposed to act like a bridge, helping the mentally ill
return to neighborhoods where they can attain some self-sufficiency. In
reality, there is nothing rehabilitative about the place — it rarely tries
to help residents obtain proper therapy, job training or, at times, even get
dressed, according to state inspection reports and interviews with workers
and residents.

There is never enough staff, and administrators and workers typically have
no mental health training. The state does not require it at adult homes,
though their residents are deeply troubled.

According to the 1997 state mental health study, of about half of Seaport's
population, more than 80 percent had histories of multiple psychiatric
hospitalizations, 35 percent had histories of violent behavior, 32 percent
had abused drugs and 13 percent had attempted suicide.

"It's just too sad a place to go to work," said Sherry Reiter, a social
worker who was assigned in the late 1990's to a clinic in the home run by
the Kingsboro Psychiatric Center. "The sadness and the violence are part of
the milieu."

Left with little supervision or treatment, residents often have psychotic
episodes, records show. One man tried killing himself by taking an overdose
of Tylenol, burning himself with hot water and then hanging himself with a
pajama top coiled into a noose. A delusional woman repeatedly stabbed
herself on the back and legs.

Newcomers to the home quickly learn there is little to do. The most popular
spot is the smoking room — a cluster of worn benches, bare walls, a
television (always on) and a floor littered with cigarette butts, spilled
coffee, ashes and discarded food.

The recreation room could offer other possibilities, but rarely does. For
much of 2001, it was closed because there was no one to run it, workers and
residents said. At other times, a high school student served as recreation
director. For these schizophrenics and manic-depressives, the student liked
to hold screenings of "Face/Off," a violent action movie about changeable
identities.

In the late 1990's, a report by a state watchdog agency, the Commission on
Quality of Care for the Mentally Disabled, rated Seaport one of the worst
adult homes. Yet in 1997, the state awarded Seaport $41,501.25 in bonus
money intended for homes that provide quality care, state records show. The
state allocated the money largely for computer training for residents.
Seaport does not have computers for residents.

It barely has a laundry room. The home had a single washing machine during
one inspection, and it showed. Residents had "dirty, stained or ripped
clothing" and were in need of a bath or shower, the inspectors wrote in
their 1999 report.

The wait to receive psychotropic medication is sometimes half an hour or
more, so some residents do not even bother. The ones who do are lucky if
they get the correct pills, state inspection reports show. Peering into
medication boxes, one inspector encountered dead cockroaches.

Andy Cadet, who ran the medication room for several months last year until
she resigned, described the consequences of the chaos. "People were getting
ill," Ms. Cadet said. "It was just a disaster."

The home itself does not provide psychiatric services, but it is expected to
ensure that residents obtain them, either from the Kingsboro clinic at the
home or from other psychiatrists who periodically visit. But the clinic,
staffed by a psychiatrist and a few other trained workers, writes
prescriptions that go unfilled. It asks that fragile residents be closely
watched, and they are not, according to interviews with clinic workers and
their records. The home's administrators, meanwhile, have long accused
clinic workers of not doing their jobs.


Continued



(Page 3 of 5)



At nights and on weekends, the residents are largely on their own. The
clinic is closed, and the home has almost no one on duty. "Nobody wanted to
take responsibility for patients who went berserk at night," said Louis
Rossetti, who worked as a nurse at the clinic from 1980 until 1996 and then
as a volunteer. "We would come in the morning and have to go upstairs and
calm them down. It just over all got worse and worse."

Ms. Courthan, Ms. Cadet and several other workers said a security guard,
Lionel Harrington, used to beat residents to subdue them. For his part, Mr.
Harrington said he only tried to crack down on the drug-dealing,
loan-sharking and prostitution.

He said the administrators at the home knew about the goings-on, especially
the crack-dealing by one of the residents. "They are well aware that this
man is destroying the residents in that building," Mr. Harrington said. He
said he was fired late last year after he was late for work.

Toward the end of the month, as residents start to run out of money, the
atmosphere in the home turns even worse, workers and residents said. Used
condoms can be found in the stairwells and hallways, as both male and female
residents trade sex for spending money, drugs or cigarettes.

"Generally, it was sex for drugs or sex for money," said Angela Johnson, a
former worker at the home. "If someone wanted a dollar, it was sex for a
dollar. Sex for anything was a big problem."

In the early 1970's, Kingsboro Psychiatric Center in Brooklyn, one in the
state's array of vast mental hospitals, began aggressively emptying its beds
as New York undertook the process of what came to be known as
deinstitutionalization.

Kingsboro was looking for places to relocate its patients when Mr. Mappa, a
local real estate developer, was looking for another business enterprise.
His brainchild was to open Seaport Manor in September 1975 and take in many
of those who were being cast out of the hospital's wards.

Only three miles from Kingsboro, the new building had a kitchen, dining
room, recreation room and 13 bedrooms on the first floor; and 40 bedrooms on
each of the second through fifth floors.

The idea, shared by Mr. Mappa and the state, was that the home would make
for a civilized alternative to Kingsboro. Mr. Mappa would also make money.
Residents would sign over their monthly government disability checks for
rent, and outside providers would pay fees to the home for the opportunity
to treat residents.

Yet neither Mr. Mappa nor the two business partners he brought in had any
mental health expertise. The money from the government never seemed enough,
and the care that came to be provided by the medical professionals was never
adequate.

As a result, a troubled psychiatric hospital was emptied and effectively
recreated in a place even less equipped to deal with hundreds of seriously
ill people.

In the late 1970's, Seaport was a focus of an investigation into adult homes
by a deputy state attorney general, Charles J. Hynes, who is now the
Brooklyn district attorney. A grand jury found that at adult homes in
Brooklyn, the condition of residents "was permitted to deteriorate to
unconscionable levels." Ultimately, no charges were brought against Seaport
or its operators, and leading state officials brushed aside Mr. Hynes's
damning portrait of the adult home system.

The state did make a few changes at Seaport, including opening a clinic in
1979, one run by workers who came over from Kingsboro. But over the years,
the state has cut the number of clinic workers to roughly 8 from nearly 20,
Kingsboro workers said.

For much of the past decade, the home — with more mentally ill people than
most psychiatric hospitals in the nation — has been run by Esther Elizabeth
Rosenberg, the daughter of one of its operators. Ms. Rosenberg, 47,
graduated from Brooklyn College in 1990 with a degree in sociology and had
little work experience of any kind when she took over the home, according to
court records and interviews.

The state has essentially called her incompetent. "The administrator is not
capable of managing this facility and correcting the problems," a 2000
inspection report said. "We recommend enforcement be pursued."

But the state's own documented dealings with Seaport show that nothing much
was done. It was not until March 2001, after years of incriminating
inspection reports and concerns that residents were being neglected, that
the state tried to discipline the home by levying a $7,000 fine.

But while it got Seaport to remove Ms. Rosenberg, it let the operators
appoint her son-in-law, Seth Fried, as administrator.

The Workers
'I Knew Jack-Diddly About Medication'

It was clear that Toshua Courthan was in over her head.

She had no mental health training yet after only a short time at Seaport,
she was promoted to case manager and then director of social services,
playing a pivotal role in overseeing more than 300 chronically mentally ill
people.

Over her two years at the home, she said, she was pressured to commit or she
witnessed a startling variety of misconduct, from the forging of records to
the misreporting of deaths. She decided in her second year that she could
not keep silent, she said, and began secretly telling state inspectors about
problems at the home. The inspectors took her calls, but otherwise seemed
uninterested, she said. The state confirmed her calls.

In early 2001, Ms. Courthan, who is black, was fired, and she sued the home
in Federal District Court in Brooklyn, charging that administrators had made
racially insensitive comments to her. Aaron Charles Schlesinger, a lawyer
for Seaport Manor, did not respond to three phone messages seeking comment.
In court papers, Seaport denied Ms. Courthan's charges.

A review of inspection reports and interviews with more than 15 current and
former workers support her account of life at the home. "Seaport's thing is,
`Let's fill the beds,' " Ms. Courthan said. " `We don't care if they are
psychiatrically unstable.' They don't care about these people."


(Page 4 of 5)

Ms. Courthan was hired as a receptionist at Seaport in 1999. With low
salaries and mismanagement, workers were constantly quitting, and she was
rapidly promoted.

Her sister, Ms. Johnson, who had worked as a clerk for the City Board of
Education, was later hired and put in charge of the medication room. Ms.
Johnson found this strange, she recalled, because "I knew jack-diddly about
medication."

Soon, Ms. Courthan and Ms. Johnson were helping to run the place, at $8 to
$9.50 an hour. They received strong evaluations from administrators and were
popular with residents, according to records and interviews, but were
swamped with work. They were supposed to meet with residents monthly, file
reports and ensure the residents were being seen by psychiatrists. But they
rarely did.

This was obvious to state inspectors. In a January 2000 inspection report,
they noted that of 30 resident files they had examined, 14 did not have
current annual evaluations, let alone monthly case notes.

Later that year, the home was expecting another inspection, and Ms. Courthan
and Ms. Johnson said Ms. Rosenberg, the home's administrator, told them to
put the files in order, by forgery if necessary.

Ms. Courthan and Ms. Johnson said they and other workers stayed late one
night and concocted hundreds of records, making up psychiatric evaluations
and signing them with the names of fictional doctors. Ms. Cadet, the former
medication worker, said she witnessed the forging.

By the time the night was over, records, some of which were shown to The
Times, reflected that many residents had seen a nonexistent Dr. Rollins and
received the same diagnosis. "Everybody, if you looked at their charts, they
were all paranoid schizophrenic," Ms. Courthan said.

While state inspectors evidently did not detect that documents were being
faked en masse, they had previously criticized the home's record-keeping,
noting that files were "altered or missing."

Ms. Rosenberg would not comment.

Ms. Courthan and Ms. Johnson said the deception did not end with the forged
records.

One night in November 2000, a resident named Dorothy Clinton set herself on
fire and later died at the hospital. Based in part on interviews with
Seaport employees, the medical examiner's office ruled the death an
accident. The home contended she had ignited herself while smoking crack in
bed.

Ms. Courthan, Ms. Peters, the former housekeeper, and other workers say the
tale of crack smoking was wholly invented; they tell a different story. Ms.
Courthan said she had recommended that Ms. Clinton be hospitalized that day
because she seemed delusional and suicidal, but that an administrator had
blocked the request.

That night, Ms. Clinton, 48, got dressed up, putting on earrings and makeup,
and then intentionally ignited herself while in bed, residents and workers
said.

Ms. Courthan said she wrote in Ms. Clinton's file the next day that she
should have been hospitalized. When Ms. Rosenberg found out, she ordered Ms.
Courthan to remove those notes, Ms. Courthan said. "Esther told me, `If you
speak to the coroner, and say anything about how depressed she was, it is
going to be a problem for us and it will be a problem for you,' " Ms.
Courthan said.

Ms. Clinton's death was one of the few the state has investigated at adult
homes. But while it cited the home for having inadequate staffing, state
records show, it does not appear that it addressed the question of whether
Ms. Clinton had been suicidal and whether her death could have been
prevented.

Three months later, Ms. Courthan was dismissed, and she said she tried to
unburden herself to inspectors one final time. She faxed them a letter on
Feb. 6, 2001, repeating and elaborating on many of her allegations. An
examination of the letter shows she wrote of how she and other workers had
forged the records, saying that they made up "those forms A to Z."

Again, she said, inspectors did nothing.

Asked about Ms. Courthan and Ms. Johnson, Robert Kenny, a spokesman for the
State Department of Health, at first said that the two had talked to
inspectors only in early 2000 and complained only about administrators'
stealing money from residents. Mr. Kenny said the inspectors cited the home
18 months later for failing to manage residents' accounts properly.

Pressed further, Mr. Kenny acknowledged that the inspectors had talked to
the two women more regularly and that they had received the faxed letter
from Ms. Courthan.

He said her allegations "were not new to inspectors."

After Ms. Courthan was dismissed, the home had Ms. Johnson arrested and
charged with stealing $200 from residents. She was fired. The charges were
later dropped.

The final indignity for many of Seaport's residents comes with a shovel full
of dirt at potter's field. Nearly one out of every four residents who died
from 1995 through 2001 was sent to the island cemetery in the East River,
without headstones to mark their graves or eulogies to recall how they
weathered their troubled lives.

Seaport, after profiting from them, made no effort to find them proper
burial. In a way, it was almost fitting, given that the residents' deaths
came with the same invisibility that surrounded their lives at the home.

Of the 79 people who died in the seven-year period, the average age of death
was 58. Twenty-four of the dead were under 50.

"People were dying like flies," Ms. Peters said. "They have nobody who is
looking after those people."

It will probably never be known how many of the deaths could have been
avoided. The home almost always either failed to notify the state about
deaths or left out details pointing to deficient care, records show.

In turn, the State Department of Health could provide documentary evidence
that inspectors looked into only three deaths at Seaport — Ms. Clinton's and
two others. Those three inquiries, in fact, were the only ones that appeared
to have been done by state inspectors at 26 of the largest and most troubled
adult homes in the city in the seven-year period, when at least 946
residents died, according to the Times's analysis.

Elayne Silverman, once a promising student who wanted to be a social worker,
was only 39 when she took her life in April 1995 at Seaport. It was just
after breakfast when she climbed the stairs to the roof, according to state
records and interviews. No workers at the home noticed. Then again, it was a
Saturday, and few were on duty. Either the alarm on the door to the roof was
broken, or it went off and was disregarded.


Continued


(Page 5 of 5)

Ms. Silverman walked around for a while before taking off her clothes,
folding them into a neat pile and then jumping, according to a Kingsboro
clinic record.

Even that failed to get anyone's attention. A neighbor eventually called the
home and said a naked body was in the parking lot. When the clinic asked
about the death, Seaport administrators could not explain how a home that
sheltered numerous people with histories of suicidal behavior could allow
such access to the roof, clinic records show.

The state never investigated her death, or those of numerous others,
according to interviews and records: Stephen Willner, 60, who succumbed to
dehydration and malnourishment in 1999; Lewis Howard, 45, who died of kidney
failure last year after no one responded when he passed out; and Albert
Jarrell, 44, who had a heart attack in 1997 and was dead before workers
thought to call 911.

While residents are free to come and go from the home during the day, the
home is required by law to keep track of them. Bed checks are mandatory, but
rarely done, residents and workers said. If a resident is missing for more
than 24 hours, a report must be filed with the state and the police.

Artie Washington had not been seen for longer than that. Not only did
Seaport not fill out a form, it did not even notice his absence.

Mr. Washington was known around the home for wearing an assortment of silly
hats, from a Santa's cap to a Burger King crown. He was last seen on the
Friday morning before Labor Day weekend in 1998. Early Monday afternoon,
workers concerned by "a foul odor" entered Room 333, according to state
records. "We found him dead, just sitting in the bathtub," said Mr.
Rossetti, the nurse at the Kingsboro clinic.

An autopsy determined that Mr. Washington, 54, had died of a seizure. It is
unclear whether he could have been saved had he been discovered earlier.
Inspectors, in one of the three death inquiries they performed, criticized
Seaport for allowing him to remain at the home even though he was unstable.
Yet the state took no action to safeguard against similar deaths.

So in July 2001, Rosendo Velez, 77, was found dead. Mr. Velez, nicknamed
Keebler because he walked like the elves in the cookie commercial, had
returned to the home in a drunken fog, workers said. He was left in his room
unattended anyway, and was found drowned an hour later in his bathtub, fully
clothed. It was not until three months later, in October, that the state
cited the home for failing to supervise Mr. Velez.

In the meantime, Martin Rochlitz, 51, was found decomposing in his
sweltering room days after dying of a heart attack during an August heat
wave, according to the coroner. Unlike the deaths of Mr. Washington and Mr.
Velez, Mr. Rochlitz's did not even warrant a question by the state, its
records show.

Kevin Johnson sees death all around him, and fears that his will be the
next.

He has seizure disorder, schizophrenia and cerebral palsy. He is mildly
retarded and cannot perform basic arithmetic. At a recent lunch, he had
difficulty pulling the wrapper off a straw. Yet, sadly, even he understands
that at Seaport, the odds are against him.

Mr. Johnson, 39, cannot forget all the seizures that have sent him tumbling
to the floor of Room 106 during the past three years. Dazed and bruised, he
is eventually found by a worker and taken to Brookdale University Hospital
and Medical Center.

Each time, Mr. Johnson is admitted to the hospital for a few days. In vain,
it calls the home for his medical and psychiatric history. "They could not
provide more information on the patient," a nurse wrote one day. As always,
he is sent back to the home.

His latest wound is a jagged gash on his forehead. He needed stitches to
close it after banging his head on the floor during a convulsion. Still, he
considers it a minor injury.

What he dreads is a repeat of what happened on a Sunday morning in July
1999. He was left alone to shower, had a seizure and passed out. It is not
known how long he lay there as he was scalded by water that inspectors have
repeatedly warned is too hot. He needed two skin-graft operations to heal
huge swaths on his chest, back and arms.

Seaport never notified the state about his injuries, as was required, and
Mr. Johnson was once again returned to the home. Left to himself, he has
devised his own way of dealing with the seizures. "I sit on the bed and try
to take it easy," he said the other day.

Ill since he was a teenager, Mr. Johnson is 5-foot-8 and beefy, with a
mustache, a round face and no family. He has a kindly disposition, but often
reverts to long silences, as if he learned long ago that the way to make it
through the day is by shutting everyone out. He sits in his room for hours,
listening to oldies on the radio and worrying that if he walks around the
home, someone will harass him for money, or worse.

With the turmoil over Seaport's fate, Mr. Johnson's future is uncertain. For
now, he soothes himself against his surroundings by reading the paperback
King James Bible that he hides in the top drawer of his dresser.

Sitting on his flimsy mattress as mice scamper by, he opens to the same
chapter and mouths the words, over and over. Second Corinthians, Chapter 5:
Do not despair, for there is a better place in the afterlife.

Home About Links Search Advocacy Editorial Experiences News Newsletters People Research Recovery Santa Cruz Site Map Guest Book

Opinions expressed in this web site do not necessarily reflect the views of NAMI Santa Cruz County, NAMI California or any affiliated organizations.  We attempt to present a balanced perspective on issues by presenting multiple viewpoints.

Copyright 2005 National Alliance for the Mentally Ill Santa Cruz County, All Rights Reserved.

FAIR USE NOTICE: This may contain copyrighted (©) material the use of which has not always been specifically authorized by the copyright owner. Such material is made available to advance understanding of ecological, political, human rights, economic, democracy, scientific, moral, ethical, and social justice issues, etc. It is believed that this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml  If you wish to use copyrighted material for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner.