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Children's Mental Health Site of the Month

 

 

Schizophrenia Update - A Free Periodic Newsletter

Series 2, Issue 15 - July 20, 2004

A Summary of Schizophrenia-related News and Events Note: Please forward this newsletter to others who might benefit To Subscribe to the newsletter, enter your email address at: www.schizophrenia.com

To Unsubscribe or change your email address, go to the very bottom of the newsletter and click on the link that says "unsubscribe".

Over 25,000 people who use the Schizophrenia Support Groups out our web site schizophrenia.com - join in today!

Schizophrenia.com is a registered nonprofit organization Letters to the Editor can be sent to the following email address: szwebmaster (at) schizophrenia.com

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TABLE OF CONTENTS

Letters to the Editor and Member News

  1. New site areas - Over 100 internet-based audio/video files
  2. Schizophrenia Genetics Research Discussion - a review of questions and answers
  3. Answer to scholarship call - University of Maryland
  4. "Northumberland Nightmare" - book review by Freebird

Main News Stories

  1. New 'Repeat Offender' Bill Will Help Convicts Rehabilitate
  2. Children await mental health services in detention
  3. How Far Should Confidentiality Extend?
  4. Bill to prevent teen suicide
  5. Enzyme linked to suicide
  6. Bi-Polar and Schizophrenia Both Lack Myelin Genes
  7. Database for Brain Disorders
  8. Electro-Stimulation of Brain Cells Causes Chemistry Change
  9. Pills to Boost Brainpower
  10. Abnormalities in Children of Sz Mothers
  11. Experts Forecast Mental Health Crisis Due to UK Diet
  12. Mentally Ill Turning to Helplines
  13. The Long Haul: Fighting Day-to-Day Mental Illness Stigma
  14. An Advocate's Opinion: Equitable Treatment Act
  15. Canadian Gov Sues TrueHope for False Claims

 

 

 

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New schizophrenia.com site areas - Internet-based audio/video files, and FAQ guides

We have two new areas of schizophrenia.com that we are very excited about.

Collection of over 100 Internet-based video and audio files

We now have an extensive collection of audio and video files concerning schizophrenia, mental illness, and related issues. You can watch or listen to these files freely from your computer at any time of the day or night. They are from credible information sources such as NPR, public radio, and universities/medical schools. Topics cover a wide range of areas (diagnosis, treatments, psychiatric medications, rehabilitation and society, family issues, interviews with authors/researchers, biology of the disease). Most are appropriate for a lay audience; some of the university files may be more helpful to those with experience in biological sciences (for example, students or researchers). The files are all archived under "Internet-based Videos" (http://www.schizophrenia.com/video/index.htm), which can be accessed off the schizophrenia.com homepage.

Frequently Asked Questions (and Answers)

The second is a comprehensive Frequently Asked Questions (FAQ) guide, compiled from the questions most commonly seen in every section of our discussion boards. The largest collection is the General FAQ, which has sections on diagnosis, treatment compliance and medication, understanding/dealing with symptoms, day-to-day living and coping strategies, and future planning for patients and caretakers. In addition to the General guide, we also have several smaller FAQ sections dealing with the specific concerns of parents, siblings, offspring, and partners of people with schizophrenia. If you don't find your answer in the General guide, it will likely be in one of these sections. All the FAQ guides are listed in the Introduction section of the website (http://www.schizophrenia.com/ami/index.html).

Please give us your feedback on both of these new additions - let us know your thoughts on layout, user-friendliness, or any other information we might add. Email us at szwebmaster@yahoo.com.

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Schizophrenia Genetics Research Discussion - summary and review of questions and answers

Schizophrenia.com discussion boards recently hosted a week-long discussion with Andras Kovach, National Project Manager for the Consortium on the Genetics of Schizophrenia. Mr. Kovach generously donated his time and expertise to address questions and concerns about the Consortium's new genetics research study and schizophrenia research in general. For the official study information, and criteria on how to become a study subject, see the following website: http://www.schizophreniaresearch.net. Schizoprenia.com believes that this is probably one of the most important studies in finding out the exact genetics of schizophrenia and therby paving the way for a cure. We encourage your participation.

As our website and discussion board administrator commented, "[t]his is the first time that someone representing a schizophrenia research study (and in this case, probably the largest such study ever conducted in the world - with over $25 million in funding) has ever visited us to tell us more about the study and clear up the confusion that many people have about these studies."

Some of the questions and Mr. Kovach's answers from the discussion are excerpted below. The complete archives of all the messages are available on the "Main Discussion" board, sub-conference "Schiz Research Studies."

Q: How do you pick the people that get to be in the research study?

A: We want to include as many families as possible, independent of where they might live. If a family qualifies, we may be able to travel your family to one of the sites. Normally, we look for a family with one person afflicted with schizophrenia, a healthy sibling, and two available parents. If you contact one of the site's recruiters, they can provide more details and conduct a telephone screen.

Q: For how long a time period is data expected to be collected?

A: We are collecting data for the next four years. We received a grant from the federal government for a 5 year study, and we've already completed about one year.

Q: Can families who live far away from the study sites still participate?

A: We only have the seven sites for now, and are willing to work with families who don't live close to one of our centers. If you are interested in participating, I encourage you to call any one of the centers listed on www.schizophreniaresearch.net, and talk to them about your options. They would do an initial screening interview to see if your family would qualify. If your family qualifies, and you are still interested in participating, it is possible to do some of the more extensive interviews by phone. However, the actual testing needs to be done in one of the study sites. In some cases, we can pay for the travel costs the family to the site, but that would be a decision to be made upon qualification into the study.

Q: Do you ask if families are already participating in genetic studies?

A: We are interested to know if a family is already enrolled in another study. There could be conflict issues, depending on the focus of the two studies.

Q: Is the Schizoaffective diagnosis included in this study?

A: Unfortunately, we do not include schizoaffective disorder in our study. We have set forth very specific guidelines in order to participate, and "fine tune" our research. We are just one study out of many studies across the US that look at mental illness, and other universities might be conducting research on schizoaffective disorder.

Q: When a blood sample is taken [for use in a study] is there a chance the information will be used against us? [I]s there any chance the information will get in the wrong hands?

A: Our scientists are VERY careful in maintaining a subject's privacy. Once blood is drawn, that blood is immediately labeled with a Subject ID, and the person's name or other identifying information are not used again in conjunction with the blood sample. We are governed by HIPAA (Health Insurance Portability and Accountability Act of 1996), which is a federal law protecting patient privacy. Your personal information would only be known to the investigators at the site where your blood is drawn, and is not shared with anyone outside the study (including the government).
 

Q: Is there any effort made to coordinate [all the schizophrenia] research? Are scientists concerned about duplicating research? Is there a research data bank scientist can reference when they’re conducting their research?

A: Generally, scientists are very informed about the latest research efforts in their respective fields through various publications (such as scientific journals). Also, scientists in a particular area, such as schizophrenia, all know each other quite well and speak to one another about latest developments in research. Many of the research studies are funded by the National Institute of Mental Health (NIMH), which is a federal government organization that approves and grants money to a university. The NIMH would keep track of all the current studies in mental health, and in schizophrenia. Scientists would use all these sources to guide them in what specific research they would like to pursue, and possibly not do the exact same thing that another scientist does. However, science depends on duplication of the same work so results can be verified/proven.

There are [also] many symposia or conferences each year where scientists meet to discuss the latest research and their results. Two big ones that many psychiatrists attend are the American College of Neuropsychopharmacology in the winter and the Society of Biological Psychiatry in the spring.

Q: Where do you see the treatment of schizophrenia in 5 yrs, 10 yrs?

A: In 5-10 years, treatment will still be a conjunction of medicines and psychosocial therapy. Concerning meds, there are now about 10-20 new drugs in the "pipeline" that are in various stages of testing. Some of these medicines are called adjunctive therapies, where more than one medicine is needed. Some of the other medicines are monotherapies, where only one medicine will be needed.

Q: [F]or a current patient, and for newly diagnosed, and long term strugglers - will genetic enhancement be expected to "heal" a person already afflicted at any of these stages of their life with sz? Or are we talking about future would-be patients who won't have to become ill?

A: Genetic therapies will hopefully be able to do both ---help treat a patient and also help prevent the development of the disease for someone who is at risk. However, this type of therapy for schizophrenia is at least 10-25 years away. For example, the gene for Huntington's disease was discovered in 1983, and scientists still don't have a cure. Technology must "catch up."

 

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Scholarship Info - University of Maryland at College Park

Thanks to the schizophrenia.com member who sent us the following email. For those interested in finding scholarships for schools other than the University of Maryland, it would be worth your time to go through local resources - the school itself, community organizations and clubs (i.e. Lions club, Rotary club, etc), church groups. These local groups can sometimes sponsor small scholarships that are not well-advertised. Even if they are not specifically for people suffering from mental illness, articulating your personal challenges with a chronic debilitating disease and the way you approach them would probably give you more than a fighting chance.

In response to the few-month old call for scholarships for schizophrenia family:
I think these scholarships are for the University of Maryland at College Park only.


Scholarships for Fall 2004 are available through the Returning Students Program of the Counseling Center. Undergraduates, 25 years or older admitted to UMCP before July 12, 2004, may apply.

1.Gerald G. Portney Memorial
Fund for men and women in good academic standing. Special
consideration is given to individuals with extenuating
life situations.

2. Charlotte W. Newcombe Scholarship for women: Students
must have completed 60 credits towards their degree by
July 12, 2004. Special consideration is given to women
with financial need and women with disabilities or have a
family member with a psychological, physical, or learning
disability.

Application deadline: Monday, July 12, 2004 (sorry, we're late)
To apply call 301-314-7693 or contact Beverly Greenfeig
(brgreen@umd.edu) or after June 28, Barbara Goldberg
(goldb@umd.edu)

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"Northumberland Nightmare" - book review by schizophrenia.com member Freebird

I encourage everyone to buy a copy of this book ("Northumberland Nightmare" - order it off schizophrenia.com) and read it. It will touch your heart and hit close to home.

The author of the book, [Chad's Father] has wrote the book in a way many of us write of our daily struggles here on the site. It is witten in a personal journal format. I found this especially touching and heart wrenching. It was as if I was reading accounts posted here at the site as I followed this family's story.

From the moment I received the book I could not put it down. Every human emotion was evoked - shock, sadness, despair and anger.

A true roller coster of crying and wanting to hug the family, to anger and wanting to catch the next flight out to slap the justice system and the local media involved with this case.

This is a true account of the horror the family went through: beginning with the whirlwind moment of dealing with the unexpected diagnosis of schizophrenia of their son Chad who was in college. The book details the son's arrest and mistreatment, stigma and ignorance of the justice "professionals", withheld medical treatment and refusal of bond to the extent of outright blackmail each time the father attempted to file a complaint of his sons treatment from the local law enforcement.

Paul Wegkamp's choice to include Nightmare in the title of his book speaks volumes. A nightmare indeed! Sadly, one many of us know of all to well and for those of us who have been lucky enough not to know, this book is a good wake up call of the injustice so many suffering with mental illness endure.

In the appendix of the book many helpful resources are listed. I was very pleased to read our site listed among them. Also, found in the appendix [about two pages] " Resources and Alternatives for Judges and Lawyers."

Paul's intention of sharing their story is to help inform and educate others. I applaud him for this and stand in amazement of strength shown, inspite of what this family has endured.

Paul, Debra, Chad, and Ali, may you know nothing but blessings from here on.
Special hugs to ((((Chad)))))!

Peace, Freebird
Parents Board Manager/Moderator

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Sponsor - Advertisement

 

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New 'Repeat Offender' Bill Will Help Convicts Rehabilitate

In an effort to address the revolving-door phenomenon of American prisons - convicts who return to prison for repeated offenses shortly after being released - Congress is considering legislation that will aid both mentally ill and other prisoners to rejoin society.

The Second Chance Act (backed by Rep. Rob Portman of Ohio and Rep. Danny Davis of Illiniois) calls for $112 million over two years to create drug treatment and mentoring programs for newly released felons. According to the New York Times Editorial article ("The Price of Prisons", June 26 2004), such an investment is well worth the potential savings if the bill helps to reduce repeat offenders. Current operating costs for overcrowded state prisons is estimated at $30 billion a year.

Related legislation currently in the House is aimed specifically at mentally ill offenders. Recent studies estimate that about one in six convicts are suffering from mental illness, a staggering statistic that highlights the current role of state and federal prisons as default "mental institutions." The Mentally Ill Offender Treatment and Crime Reduction Act (passed by the Senate in 2003) asks for a $100 million investment in inmate mental health services, particularly special training for those who work in mental health courts. To read more about the Mental Health Courts (special courts specifically designed for mentally ill offenders that include treatment and follow-up psychiatric care with sentencing), see the 6/24/04 schizophrenia.com newsblog entry: "Separate Courts For Mentally Ill Focus on Rehab."

http://www.schizophrenia.com/sznews/archives/000643.html

Article Source: NY times Editorial Desk, 6/26/04
Headline: "The Price of Prisons"

 

 

 

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Children await mental health services in detention

Rep. Henry Waxman (D-Calif) and Sen. Susan Collins (R-Maine) have recently commissioned the first Congressional investigation into children with mental health needs improperly incarcerated and forced to wait for services in juvenile detention centers.

The report findings were staggering. Key statistics include the following:

-Over a 6-month period, nearly 15,000 youth in detention centers were waiting for mental health services. The number of youth waiting in detention each night for needed services represents about 7% of all incarcerated youth.

-While waiting in detention for health services, youth in over 160 facilities attempted suicide. Research indicates that youth in detention commit suicide at a rate 4 times greater than that of the general young population.

-A quarter of the detention centers that answered the survey indicated that they provide no or inadequate mental health services. One administrator from Pennsylvania stated that "mentally ill youth placed in juvenile detention facilities stress our centers more than any other problem." Moreover, the estimated cost to such facilities due to mentally ill youth come to about $100 million.

Suggested legislation to address the problem includes the Keeping Families Together Act, a bill supporting state efforts to coordinate care and improve community-based services for mentally ill children.

Tammy Seltzer, senior staff attorney at Bazelon Center for Mental Health Law, supported the bill.

"Today's hearing underscores the critical need to do something concrete to address the crisis in children's mental health...Senator [Susan] Collins' bill is an essential step toward creating a children's mental health system where kids get services, not jail time, when they need help."

The Bazelon Center for Mental Health Law is a national legal advocate for children and adults with mental disabilities. For more information, see http://www.bazelon.org.

View the survey and its findings at http://www.house.gov/reform/min/

See the full news article at http://releases.usnewswire.com
Article: "Thousands of Children with Mental Illness Warehoused in Juvenile Detention Centers Awaiting Mental Health Services" (July 7, 2004)

http://releases.usnewswire.com/GetRelease.asp?id=105-07072004

 

 

 

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How Far Should Confidentiality Extend?

Following the suicide of a 24-year-old mental health patient on the grounds of Calvary Hospital, the woman's family and the Canberra coroner are charging that the need to protect and care for a patient should override a patient's right to privacy. The woman's treating psychiatrist did not inform her parents that her diagnoses had been changed from bipolar disorder to schizo-affective disorder, "because of a need to protect patient confidentiality and maintain her dignity." They were also not informed by the hospital staff of their daughter's suicidal intentions.

Other concerns raised by the family in court included the lack of an adequate follow-up plan, at least one that they were informed about. According to the patient's father, his daughter waited six weeks after being discharged from the Calvary psychiatric unit before meeting for the first time with her treating psychiatrist.

There are currently forms for patients to designate certain people to whom medical and treatment information can be released; however, different measures may be necessary in the case of the mentally ill. One of the hallmarks of many mental disorders is poor insight of the patient into their own illness - because of this, they may decline to release diagnosis and treatment information to family members. Another problem is that many families are unaware of current confidentiality legislation, and the need for such a release form.

For the full news story, see the Canberra Times (http://canberra.yourguid.com.au).
Article: "Protection Ahead of Confidentiality" (July 9, 2004).

For further opinions about changing confidentiality and commitment laws in the mental health care system, see 'Getting more say: families want laws changed in mental health system.' (available at http://www.psychlaws.org/GeneralResources/article208.htm). 

To read about individual state legislation involving patient confidentiality, commitment criteria, and other legal issues related to the mentally ill, see 'Legal Resources' at http://www.psychlaws.org/LegalResources/index.htm

 

 

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Bill to prevent teen suicide

The Garrett Lee Smith Memorial Act, sponsored by Oregon senator Gordon Smith in honor of his late son, would allow $60 million dollars in funding to help states develop suicide prevention strategies and create more mental health services on college campuses.

21-year-old Garrett Smith committed suicide in his apartment last year. He suffered from bipolar disorder and various learning disabilities.

Suicide is an all-too-common tragic end for people suffering from severe mental disorders such as schizophrenia, bipolar disorder, or depression. According to Dr. E. Fuller Torrey in his book "Surviving Schizophrenia, "suicide is the number one cause of premature death among schizophrenics" (p. 271, 3rd ed).

Several senators were touched by senator Smith's grief-filled account of his son's death, and shared their own personal experiences with the suicide of a loved one. The Senate unanimously passed the bill within hours of its introduction. It has not yet been brought to vote in the House.

One high-profile supporter of the measure was Senator Pete Domenici, who had originally gone home at the time of the vote, but quickly returned to show his support. Domenici is the author of the Mental Health Parity act, and said he will make another effort to push it through in the near future.

For the full news article, see MedicineNet.com
( http://www.medicinenet.com/script/main/art.asp?articlekey=34055 )

Article: "Senate Suicide Bill Passes" (July 9, 2004).

For more information on suicide prevention and community crisis resources, see 'Preventing Suicide' at http://www.schizophrenia.com/suicide.html

For more information on recent mental health legislation (authored by Pete Domenici and Paul Wellstone), see the following news articles on the schizophrenia.com newsblog:

"An Advocate's Opinion: Equitable Treatment Act" (concerning the Paul Wellstone Mental Health Equitable Treatment Act). entry date: June 27, 2004 at: http://www.schizophrenia.com/sznews/archives/000652.html
 

 "When Politics is Personal" - Senator Pete V. Domenici and the shaping of the US govt. policies on brain diseases/mental illness.
Entry date: Schizophrenia update newsletter, Feb 2003 issue.

http://www.schizophrenia.com/New/Dec02b/politics.htm

 

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Enzyme linked to suicide

Reduced levels of brain enzyme Protein kinase C (PKC) may contribute to suicidal behavior, new research shows.

PKC is an enzyme that promotes neuron communication in the brain; it has been previously linked to depression and other mood disorders.

A study at the University of Illinois examined the brains of 34 teenage subjects; 17 had committed suicide, the others had died from other causes. The levels of PKC were significantly lower in the brains of the suicide victims (9 of which had a history of mental disorder, and 2 more of which suffered from substance abuse).

The causal link - whether lowered PKC levels increases suicidal behavior, or whether increased suicide risk affects PKC levels - is still unclear. Moreover, Dr. Peter Parker (principle scientist at the London Cancer Research Institute) cautioned that the results might be skewed if the brain samples were not taken immediately after death. PKC protein degrades naturally over time.

However, with this preliminary knowledge, the research team is investigating treatment possibilities that might target the PKC enzyme in suicidal patients.

For the full news article, see news.bbc.co.uk
( http://news.bbc.co.uk/2/hi/health/3866799.stm  )
Article: "Mood enzyme linked to suicide" (July 5, 2004)

Research Abstract Info (available at www.pubmed.com): "Altered _expression and phosphorylation of myristoylated alanine-rich C kinase substrate (MARCKS) in postmortem brains of suicide victims with or without depression" (Pandey GN, Dwivedi Y, et al.; J Psychiatr Res. 2003:37(5):421-32).

For more research on the neuroscience behind suicidal tendencies, see the feature article in the February 2003 edition of Scientific American: "Why? The Neuroscience of Suicide" ( www.sciam.com ). This article focuses mainly on the role of serotonin availability in the brains of suicide victims.

See also the NIMH Suicide Research Consortium
(at www.nimh.nih.gov )

 

 

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Bi-Polar and Schizophrenia Both Lack Myelin Genes

Bi-polar disorder and schizophrenia share some of the same symptoms - notably hallucinations and delusions (during manic episodes for bipolar patients, during depressive or psychotic episodes for schizophrenia patients). Especially in children, it can be difficult to distinguish between the two conditions on the basis of clinical presentation alone. And schizoaffective disorder is even more similar, characterized by both the psychotic symptoms of schizophrenia and the moodswing component of bi-polar.

In a recent autopsy study at the Department of Neurobiology, Babraham Institute, (Cambridge, UK), in collaboration with Johns Hopkins University, (PubMed Abstract: 'Oligodendrocyte dysfunction in schizophrenia and bipolar disorder' Lancet 2003 Sep 6:362(9386):798-805), scientists identified a similar genetic foundation for the two disorders. When the genetic information in the brains of 30 affected patients (15 with schizophrenia, 15 with bi-polar) were compared with that of 15 normal subjects, several genes responsible for the synthesis of myelin were expressed in the normal subjects but in neither group of affected patients. The "missing" genes were not exactly the same for schizophrenia and bi-polar disorder, but there was significant overlap.

Myelin, or the lack thereof, has been implicated in other research as a possible cause of schizophrenia symptoms. During normal development it sheaths neurons processes, protecting them and vastly increasing the speed and efficiency of signal transmission. Myelination is important for maturing development and behavior. A large portion of this process in the brain takes place during the teenage years; however, brainscans of adolescents with schizophrenia show prominent abnormalities in the myelin 'white matter' of the frontal lobes.

Scientists are now looking to determine whether the brain regions showing abnormal myelination are similar in both schizophrenia and bipolar patients.

To read more about abnormal myelination in adolescents with schizophrenia, see 'Faulty wiring in the brain may cause early-onset schizophrenia' (Schizophrenia Update, Jan 2004; available at 'Newsletter Back Issues' at www.schizophrenia.com )

To see more research about the similar genetic profiles of schizophrenia and other disorder such as bi-polar, see 'Schizophrenia and Manic Depression Share Gene Flaw' (Schizophrenia Update, Sept 2003; available at 'Newsletter Back Issues' at www.schizophrenia.com)

Source: Harvard Mental Health Letter, Jan 1 2004
HEADLINE: In Brief - Bipolar disorder and schizophrenia: A common basis?

 

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Database for Brain Disorders

IBM and the Brain Resource Company (Sydney, Australia) have recently released the "IntegNeuro" kiosk, a desktop lab that will allow trained practitioners to test patients for a variety of brain disorders from within a hospital or clinic, simply by matching the patient's data to a comprehensive international database.

Dr. David Dembo of IBM's health informatics unit is encouraging about shifting healthcare to a "proactive science" that utilizes data management technology to screen and diagnose a wider variety of patients.

"Because of our new understanding of genetic predispositions and having a database like BRC's where you have a comparator of normative function, we're able to predict which patients are likely to get a disease and therefore do pre-symptomatic testing and intervention," he says. Information for disorders such as ADHD, dementia, Alzheimer's schizophrenia, and post-traumatic stress and conduct disorders are already stored in the brain database. Developers are looking to add depression and head injury data next.

The hope is that such a large, comprehensive database will help to standardise clinical data and reveal specific markers for certain disorders, something that smaller existing databases are unable to do because of insufficient information.

The database can be helpful not only to screen at-risk populations, but also to customize treatments to specific biological and genetic profiles.

For the full news article, see Australian IT
( http://australianit.news.com.au ).
Article: "Brain disorders put in order" (July 13, 2004).

To read more about the BRC IntegNeuro database, and other products in development, please visit their website
( http://www.brainresource.com ).

 

 

 

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Electro-Stimulation of Brain Cells Causes Chemistry Change

Electro-convulsive therapy (ECT) has been a contraversial, not infrequently used treatment for serious depressions and some cases of psychotic disorders for some time, but doctors did not know the cause of its beneficial results.

New research from the University of California, San Diego may shed some light on a possible mechanism. When scientists manipulated the electrical currents flowing through the nerve cells of frog embryos, they were able to change the levels of released neurotransmitters depending on whether electrical activity was increased or decreased. The affected neurotransmitters played a role in forming new connections between nerve cells.

"Different frequencies of signals lead to the appearance of different neurotransmitters," said Nicholas Spitzer, a UCSD neuroscientist. "The concept then would be to stimulate the nervous system (through treatments like Transcranial Magnetic Stimulation, or TMS) with the relevant frequencies of electrical stimulation to try to alter the balance of transmitters."

Neurotransmitter imbalance, such as dopamine levels in schizophrenia and serotonin levels in depression, has been implicated in numerous research studies as being behind some of the disabling symptoms of the disorders.

The next step before mental illness patients see any direct benefit will be to determine whether the same findings hold true in adult organisms with mature, more complex nervous systems. Clinical trials in humans are still several years away.

However, scientists look toward the future with hopes of developing alternative treatments to medication therapies. "If we could find a way to stimulate the function (of neurons) electrically instead of with drugs, that may actually be a much more . . . natural remedy," said Gabrielle Leblanc, a program director at the National Institute of Neurological Disorders and Stroke, which helped fund the study.

For the full-text news article, please see 'Scientists at UCSD report on electrical stimulations of the brain' in the San Diego Union Tribune
( http://www.signonsandiego.com ), June 3 2004.

Read more on Transcranial Magnetic Stimulation, an alternative therapy that shows early promise in the treatment of mental illness (available under "Other Treatments" on the schizophrenia.com website).

Internet Audio and Video Files on ECT (available under "Internet-Based Videos" on the Schizophrenia.com website):
--ECT Current Practice and Guidelines (U. New Mexico grand rounds presentation)
--Patient Opinions of ECT (researcher interview)

See the following articles for more information on electroconvulsive therapy (available under 'Recovery and Resources' on the schizophrenia.com website):

Electroconvulsive Therapy Overview
 

 

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Pills to Boost Brainpower

With all the anti-aging, appearance-altering, and self-improvement products currently on the market, maybe it's no surprise that scientists are in the early stages of developing drugs meant to improve mental ability.

There's no doubt that such a drug would appeal to many people trying to avoid the natural "cognitive decline" that comes with aging, particularly in a world that is moving faster, working longer, and sleeping less. However, the people with clear potential to benefit are those living with cognitive deficits outside the normal range - traumatic brain injury victims and the mentally ill.

According to John Tallman, CEO of Helicon Therapeutics which is currently developing such a drug, "The hallmark...is [that] they don't create more memory. What these drugs really do is enhance the conversion process of short-term to long-term memories."
Other companies with research teams in the game include Sention and Memory Pharmeceuticals.

Memory Pharmeceuticals indicates that it is developing the drugs with brain-impaired patients in mind. However, the company "acknowledges that the potential market for its compounds, one of which is being tested in humans, might extend far beyond patients with Alzheimer's and other memory-robbing ailments. Though 37 million people worldwide have Alzheimer's disease, the company says, more than 180 million — or half of all people over 65 — are experiencing 'age-associated cognitive decline.' "

The decision that every individual has to make, whether healthy or ill, is whether the potential benefits of this or any other drug outweigh the risks. Judging by the number of students who are willing to take energy-enhancing drugs or supplements (e.g. ritalin, vitamin B12, or "BrainQUICKEN capsules") for an extra boost, the potential market for memory-enhancing drugs could be huge.

For the full news article, see USA Today
( http://www.usatoday.com/news/health/ )
Article: 'Smart pills' make headway' (July 7, 2004)

 

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Abnormalities in Children of Sz Mothers

New evidence just in for the role of heredity in schizophrenia.

A study in the American Journal of Psychology shows that an significantly increased percentage of offspring from mothers with schizophrenia have neurological abnormalities, as compared to the offspring of normal mothers OR to the offspring of mothers with affective psychosis.

The study evaluated the children of mothers with schizophrenia, mothers with affective psychosis, and mothers with no history of psychiatric disorder. The children were tested for neurological abnormalities (such as primitive reflexes, involuntary movement, and cranial nerve abnormalities) at infancy, age 6, and young adulthood (mean age 22.4 years).

Results found a high percentage of offspring who showed abnormalities at 6 years old still retained these abnormalities at age 22. This correlation was not observed for those offspring who only showed abnormal neurologic symptoms at infancy, but not during later stages of development.

Researchers concluded that the familial risk of schizophrenia "is associated with neurodevelopmental disturbance that is manifest throughout life and belongs to a different biological continuum from that of affective psychosis."

I personally interpret this as: Try not to be overly concerned about the tendencies of infants and very young children - wait and see how they continue to develop.

For the full news article, see 'Neurological Problems Common in Offspring of Schizophrenia Mothers' (Medscape News - http://www.medscape.com/viewarticle/482291,  July 6 2004)


For more info about the heritability of schizophrenia in families, see 'Heredity and the Genetics of Schizophrenia.'
( http://www.schizophrenia.com/research/hereditygen.htm )

For info on what you can do to help lower your (and your children's) risk of developing schizophrenia or related psychotic disorders, see Schizophrenia - Causes and Prevention
( http://www.schizophrenia.com/hypo.html )
 

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Experts Forecast Mental Health Crisis Due to UK Diet

Previous research has already established a link between a Omega-3 fatty acid deficiency (found in fish, and "green" foods such as cabbage) and an individual's risk of developing schizophrenia. For example, a study released from the Royal College of Psychiatrists showed that people who ate lots of sugar and dairy, but not much oily fish, were more likely to develop severe mental disorders.

Now medical experts are predicting a future of burgeoning mental health issues, due to gradual changes in the national UK diet over the last 20 years.

Shifts in farming and food techniques, such as feeding livestock on processed grain and vitamin instead of omega-3 rich foods like grass, have decreased the presence of omega-3 acids in foods that a majority of people consume on a regular basis. Low consumption of fruits and vegetables is also compounding the issue.

Studies have also shown that expectant mothers with low intakes of omega-3 are more likely to have children who will later develop mental, behavioral, or developmental problems. The mothers themselves were more prone to depression.

The UK is attempting to divert what is being forecasted as a "major health crisis" by encouraging increased consumption of oily fish (example; fresh salmon - but not farmed salmon which is higher in toxins - and sardines). Officials are also considering fortifying other foods with omega-3 supplements. Scientists are working on methods to increase the natural production of omega-3 in cow milk.

Read the full report, 'Change in UK Diet Could Trigger Mental Health Crisis' (June 28, 2004) at news.independent.co.uk   

For more information on the role of diet (particularly omega-3 fatty acids) in schizophrenia and brain development in general, please see: http://www.schizophrenia.com/treatments.htm - sections on Omega-3, vitamins and anti-oxidants, gluten-free diet, and more.

See also 'Omega-3 Fatty Acids and Mental Health: Is It Just a Fish Tale?' from St. John Health website ( www.stjohn.org ). Describes the research linking omega-3 levels with several mental disorders and their symptoms (including schizophrenia), and has a list of recommendations and caveats concerning omega-3 in the diet.

Diet and Schizophrenia - By Dr. Malcolm Peet, University of Sheffield
( http://www.shef.ac.uk/uni/projects/omega3/dietand.htm )

To learn about the possible detrimental effects of a high-sugar, high-fat diet on mental health, see 'Nutrition Affects Long-Term Schizophrenia Outcome' (DailyNews Blog on Schizophrenia.com, June 20 2004)

 

 

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Mentally Ill Turning to Helplines

As it becomes harder and harder for the mentally ill and their families to gain entrance into the formal healthcare system, phone services such as Australia's SANE helpline are seeing significant increases in their call volume.

SANE recieved 15,330 calls during the last year, nearly a 200% increase from the 8560 calls recieved in 2002.

Probable reasons for flooded helplines include ambiguous legislation barring entrance into mental health facilities, and overworked, understaffed resource centers, two factors that make it difficult for patients and their families to receive and maintain the care they need.

Said SANE executive director Barbara Hocking, "A significant number [of callers] would be people who know they're unwell or their family members are becoming unwell and are told, 'You're not sick enough'," she said.

The rising volume of calls can also be attributed to factors such as increased awareness of mental illness, and increased incidence of disorders such as psychosis, anxiety disorders, and depression.

The breakdown of calls to SANE in 2003 are as follows:

* Undiagnosed 26 per cent

* Depression 22.5 per cent

* Schizophrenia 20.7 per cent

* Bipolar 12.5 per cent

* Anxiety disorders 8.5 per cent The remainder of calls were for issues such as borderline personality disorder, attention deficit hyperactivity disorder and autism.

For the full text article, see 'Mentally ill turning to helplines' in The Age ( www.theage.com.au ), June 22 2004.

Schizophrenia Anonymous toll-free helpline: 1-800-482-9534 x 108

NAMI information and referral service: 1-800-950-NAMI (6264).

For more national and international support resources, please see Support Groups on schizophrenia.com
( http://www.schizophrenia.com/coping.html )

 

 

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The Long Haul: Fighting Day-to-Day Mental Illness Stigma

Although we are all tempted at times to tease our friends with good-natured name-calling - obsessive, nut-case, whacko, psycho - Stigmabusters at NAMI remind us that these terms can perpetuate harmful stigmas held against the mentally ill population.

The Stigmabusting team at NAMI takes issue with insensitive images and slogans that they find in the media - everything from Disney to Nintendo to the Boy Scout magazine 'A Boy's Life'

Robert Lundin, active NAMI stigmabuster and schizophrenia patient, is a prime example of someone seeking change in issues that directly affect his own life. Lundin speaks simply about his illness and his life at police departments, schools, companies, nursing homes, and community centers, believing that "There is no more powerful way to change attitudes than to make positive contact with people with mental illnesses."

Lundin has also co-authored his own story in "Don't Call Me Nuts: Coping With the Stigma of Mental Illness", in an effort to bring that positive contact to a larger audience.

Lundin finds that after hearing him speak, many people with similar problems feel encouraged enough to come forward and seek help. Others who are not diagnosed themselves find better understanding for the mentally ill they encounter at work, at school, or in their neighborhoods.

Schizophrenia.com  is proud and happy to be doing our part to foster positive contact between those with mental illness and those that interact with them. This positive impact comes largely from the active participation of our members, who freely and generously share experience, stories, advice and support. Thank you all for being stigmabusters!

To read Robert Lundin's own account of his illness and his struggles with stigma, see 'Coping With A Major Mental Illness' at http://schizophrenia.com/stories/ludkin.html

See also an online video presentation by Dr. Patrick Corrigan, co-author with Robert Lundin of the book "Don't Call Me Nuts! Coping With the Stigma of Mental Illness. Available at http://www.schizophrenia.com/video/index.htm#stigma 

To read more about NAMI's stigmabusting efforts, or to become an official NAMI Stigmabuster yourself, see 'Fight Stigma: Become a StigmaBuster!' at www.NAMI.org

Source: Chicago Final Edition, Section Q ; Zone C; Pg. 7
Article Headline: Mental Health Stigma Obscures Real, Vital People (Byline: Julie Deardorff).

 

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An Advocate's Opinion: Equitable Treatment Act

The Paul Wellstone Mental Health Equitable Treatment Act, currently stalled in Congress, is a ticket to mental health parity from health insurers.

The bill would prevent limits on mental-health benefits (such as higher deductibles or higher co-payments for services) that are currently not imposed for physical health conditions.

Janet McCracken is a psychologist at Highland's Association in State College and an associate professor at Penn State. She is of the opinion that such a bill, rather than causing excessive increases in insurance costs, would actually improve the financial situation by relieving the public health sector from providing costly services for the mentally ill whose private insurance benefits have run out.

Her opinion piece in the Centre Daily Times (originally submitted on May 26, 2004) compares the projected increases to health care insurance under full mental-health parity (less than 1% increase in premiums) to the estimated $80 billion current annual loss to our economy in sick leave, unemployment, and lost productivity of the mentally ill.

For Dr. McCracken's complete opinion piece in the Centre Daily Times (www.centredaily.com), please see the article:'We Can Do More to Help Those with Mental Illness.'

For more information on the Mental Health Equitable Treatment Act, and how you can help support its passage by contacting your congress member, see 'Paul Wellstone Mental Health Equitable