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March
President’s Message by
Diana Wickowicz For a long time now, I have been dealing with my much-loved
family member being extremely resistant to treatment. This has been an ongoing
heartache and has created serious frustration. She’s not sure there is
anything wrong with her. She believes her delusional ideas to the extent that
it’s too scary to oppose them most of the time. Where do we draw the lines as
her caring family? I’m sure we can all relate to this experience. I have just
recently been exposed to a book that speaks directly to this issue. I want us
all to know about it. It was written by Dr. Xavier Amador who has a brother with
schizophrenia. In his book I Am Not Sick, I don’t Need Help, the
questions of compliance and willingness to accept the mental illness are
addressed. He provides real practical applications for family and physicians
when dealing with the crazy making dichotomy of denial and illness. He refers to
this as “poor insight” or “anosognosia”. He defines this as a brain
dysfunction that prevents the patient from realizing their illness and,
consequently, from understanding their need for treatment and medication. It is
part of their illness. We know intuitively that they’re not just trying to be
defiant and resistant – but sometimes it certainly feels like resistance. His
approach to managing this resistance to treatment is based on a goal of
collaboration. He elicits this goal with four strategies based on the acronym
LEAP. LEAP stands for listen, empathize, agree, partnerships. This means
really listen empathically, make observations together, meet the patient half
way and forge a partnership to achieve agreed-upon goals. This can be
a painstaking procedure, but an incredibly worthwhile one. We all deal with these issues of resistance and denial,
probably more frequently than infrequently. We all have to find a way to nudge
our ill family members into consistent treatment. Where do we draw the line
between forced treatment and free will? These are tough questions for family
members as well as society. Dr. Amador’s first hand experience, his research,
and his strategies excite me. I hope this information can be a boon to all as it
has for me. Remember, we are not alone.
We have each other. His book can be purchased at - www.vidapress.com or toll free at (877) 990-2369. |
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